As criteria for medical assistance in dying shifts, calls for more alternatives, support for people who are suffering

 Vancouver Sun

Kristen Holliday

The last time Ray Chwartkowski saw his sister, Cheryl Lowen, was two days before she died in December, 2019.

On that day, he was shocked to learn that her death was scheduled, as she had been approved for medical assistance in dying, often referred to as MAID.

“She never had a diagnosis for any terminal illness,” he said. “I consider her death a total tragedy.”

Chwartkowski, a digital content creator who lives in Vancouver, hasn’t seen Lowen’s official MAID application or assessment paperwork, but he believes his sister should not have been eligible for medical assistance to end her life.

He said Lowen, who was 50 when she died, had a difficult childhood and struggled with physical and mental health problems throughout her life. In mid-2019, she was diagnosed with median arcuate ligament syndrome, a chronic illness that causes severe abdominal pain.

Chwartkowski said he has compassion for her pain but is certain she didn’t meet MAID’s criteria of a reasonably foreseeable death. He also questions her ability to make a well-informed decision after receiving the difficult diagnosis.

“From what I understood, she was refusing to eat, she was refusing immediate medical attention,” said Chwartkowski, adding that she also refused surgery to treat her condition. . . .

. . . Chwartkowski said, to his knowledge, Lowen applied for MAID twice and was denied the first time. . . . continue reading

Lack of support vs. option to die

The London Free Press

Reproduced with permission

Leonie Herx, Ramona Coelho, Sohail Gandhi

Lack of support vs. option to die

As the COVID-19 pandemic dominates the political agenda and strains the country’s health-care systems, the federal Liberals are intent on passing Bill C-7, which proposes to expand medical assistance in dying (MAiD) to those who are not dying.

Proponents say the bill allows choice and dignity for those with chronic illness and disability. However, the bill fails to provide them with the dignity and humanity that comes with good care and access to supports.

We are doctors who witness the struggles that confront our patients and their loved ones every day. Those living on the margins and with disabilities face significant barriers to care though systemic discrimination (ableism) that can make it harder to live a healthy, fulfilling life in community.

As doctors we should be instilling hope, supporting resilience and using our expertise to find creative solutions to address health and well-being. Instead, we would be required to suggest assisted suicide as an option if this bill becomes law.

Spring Hawes, a woman who has had a spinal cord injury for 15 years, said: “As disabled people, we are conditioned to view ourselves as burdensome. We are taught to apologize for our existence, and to be grateful for the tolerance of those around us. We are often shown that our lives are worth less than non-disabled lives. Our lives and our survival depend on our agreeableness.”

A choice to die isn’t a free choice when life depends on good behaviours and compliance to societal norms. Sadly, the medical community can be complicit in this messaging.

Gabrielle Peters, a brilliant writer who has struggled with poverty since her disability, has shared that a health-care professional sat at her bedside and urged her to consider death. This was just after Peters’ partner announced he was leaving her because she was too much of a burden and she no longer fit into the life he wanted.

Doctors can pressure someone to die as in Peters’ situation but also more subtly can confirm a patient’s fears that her life is not worth living and MAiD would indeed be a good medical choice.

Day after day, we participate in a health-care system and a social support system that does not come close to meeting the basic needs of our most vulnerable patients. However, our role as physicians should always be to first advocate that our patients access all reasonable supports for meaningful life with no suffering.

But alas, Canada does not seem to prioritize health care and supports for all, and soon, that lack of support will be pitted against an option to access death in 90 days.

Patients entrust doctors to make ethical decisions every day regarding their care and to make recommendations that are always aimed at promoting health and healing. The core role of medicine is to be restorative, not destructive. Advocating for our patients’ health and well-being is solemn oath we took.

As physicians we help our patients do many things in the context of a trusting, shared decision-making process. Doctors encourage healthy habits. We refuse to prescribe antibiotics when patients have a viral infection, or opioids on demand. We pull a driver’s licence when we have concerns for patient safety and the public good. We refuse to write mask exemptions without good reason. We serve both patient and the common good.

All of this requires courage to not betray the trust society and the patient have bestowed on our profession. Society’s belief in the inherent virtue and ethics of the profession has been the necessary basis of the physician-patient trust. Would you trust your doctor if you thought they didn’t care about your safety and well-being?

While we recognize patients have the right to ask for MAiD, physicians must not be forced to suggest or forced to facilitate this, especially when reasonable options for living with dignity exist. We must continue to offer our patients what is good and practise medicine with integrity.

As Thomas Fung, physician lead for Siksika Nation, a southern Alberta First Nation, said: “Assisted death should be an option of last resort, and not the path of least resistance for the vulnerable and disadvantaged. Conscience protection is needed in this bill, as no one should be forced to participate in the intentional death of another person against their goodwill.”

One of the most important foundations of our Canadian identity is that we are a caring, compassionate country. We are proud of our universal health-care mandate, and we place a high premium on being inclusive and tolerant while working hard toward the accommodation and integration of marginalized and vulnerable members of our community. And yet, if Bill C-7 is allowed to stand without amendments, we will be in serious danger of losing this fundamental element of our Canadian identity.

Ramona Coelho is a family physician in London. Sohail Gandhi is immediate past-president of the Ontario Medical Association. Leonie Herx is division chair and associate professor of palliative medicine at Queen’s University and past-president of the Canadian Society of Palliative Care Physicians. An earlier version of this article appeared in the London Free Press.

Canadian parliament asked to prohibit coercion in euthanasia

Protection of Conscience Project proposes amendment to euthanasia/assisted suicide bill

News Release

Protection of Conscience Project

The Protection of Conscience Project is asking the Parliament of Canada to make it a crime to force people to become parties to euthanasia and assisted suicide.

The Project has proposed an amendment to Bill C-7, a pending euthanasia/assisted suicide bill. The amendment would establish that, as a matter of law and national public policy, no one can be compelled to become a party to homicide or suicide, or punished or disadvantaged for refusing to do so.

The proposed amendment would not prevent the provision of euthanasia or assisted suicide by willing practitioners, nor rational arguments aimed at persuading practitioners to participate, nor the offer of incentives to encourage participation. However, it would prevent state institutions or anyone else from attempting to force unwilling citizens to be parties to killing someone or aiding in suicide.

The need for the amendment is demonstrated by policies in Ontario, Nova Scotia, New Brunswick and Manitoba that compel health care workers to become parties to inflicting death upon patients. Further, Bill C-7 will increase demands that they participate in euthanasia and assisted suicide in increasingly controversial cases, since it will formally legalize euthanasia and assisted suicide for people who are disabled but not dying, and for those who lose the capacity to consent after having arranged for the procedures but before they have been provided.

Parliament has used its criminal law power to prohibit procedures that might be asked of health care workers, like female genital mutilation, and the government plans to prohibit some forms of “conversion therapy.”

“It is clear that the federal government can make it a crime to force people to become parties to homicide and suicide,” said Sean Murphy, Administrator of the Protection of Conscience Project.

“The Project hopes that Liberal, Conservative, Bloc, Green and Independent parliamentarians can agree that,whatever one might think about euthanasia and assisted suicide, it is unacceptable to compel unwilling Canadians to become parties to killing other people.”

Contact: Sean Murphy, Administrator
Protection of Conscience Project
protection@consciencelaws.org

Quebec law and freedom of conscience for health care professionals

Sean Murphy*

Unlike other Canadian provinces, Quebec codes of ethics for health care professionals are enacted by provincial statute. Quebec is also unique in having a provincial euthanasia law, which includes a protection of conscience provision for health care professionals specific to that service.

Freedom of conscience for services other than euthanasia
Physicians

The Code of Ethics for Physicians1 and the gloss on the Code by ALDO Quebec,2 an authoritative document, require objecting physicians to advise patients of the consequences of not receiving the contested service, and “offer to help the patient find another physician.” They are not obliged to help the patient find someone willing to provide the contested service. Objecting physicians are normally quite willing to explain how patients can find other physicians or health care professionals. . . [Full text]

Quebec’s Act Respecting End of Life Care

Reportable and non-reportable euthanasia

Sean Murphy*

Introduction

Quebec’s euthanasia law, the Act Regarding End of Life Care (ARELC), permits two kinds of euthanasia, distinguished here as reportable and non-reportable euthanasia.

Reportable euthanasia is identified as “medical aid in dying” in ARELC.1 Only physicians may administer a lethal substance, and only to a legally competent person who is at least 18 years old, meets other criteria and personally gives informed consent. Physicians must conform to procedural guidelines and reporting requirements. Most people probably believe that this is the only type of euthanasia authorized by the law.

Non-reportable euthanasia is not explicitly identified in the law, but is permitted for legally incompetent patients (including those under 14 years old) who are not dying. Substitute decision makers acting under the authority of Quebec’s Civil Code2 can order them to be starved and dehydrated to death. There are no procedural guidelines, no reporting requirements, and it appears that the order can be carried out by anyone responsible for patient care.3 All of this was incorporated into ARELC by a revision of the original text.

Note that section 50, the protection of conscience provision in ARELC for health care professionals, pertains ONLY to reportable euthanasia. The Act does not recognize the possibility of conscientious objection by health care professionals unwilling to participate in euthanasia by starvation and dehydration. . . [Full text]